http://www.adrenalcancer.org/ATAC_Video.html
~Raising Awareness~
There are approximately 200 different types of cancer
Government funding is dedicated to the 10 to 20 most common cancers
Unfortunately, approximately 90% of all cancers are considered rare
A rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population.
In the United States, the Rare Disease Act of 2002 defines rare disease
strictly according to prevalence, specifically "any disease or
condition that affects less than 200,000 persons in the United States," or about 1 in 1500 people.
That means of the approximately 200 cancers currently existing today, many rare and ultra rare cancer are underfunded.
ACC is just one of many under funded cancers.
One in a million people per year are receiving a diagnosis for Adrenal Cortical Carcinoma for which there is no cure and the standard treatment is a 50 year old protocol of a synthetic form of the banned pesticide DDT.
It is scary enough receiving a diagnosis of cancer,but to be told in the same breath that there is no cure or no treatment for your type of cancer is crushing to the human spirit!
We have achieved amazing feats in our history from putting men on the moon to wiping away the death sentence once associated with an AIDS/HIV diagnosis.
We have improved cancer mortality deaths by almost 18% across the board over the last 30+ years.
We have treatments for many cancers now that never had treatments or cures for in the past, all because of research!
We need to raise awareness for this ultra rare cancer considered an orphan disease which currently does not have a cure, or dedicated funding for research!
Join the Cause~We can do this!
~Raising Awareness Campaign~
We are looking for Ultra
Rare Cancer patients, advocates, family and friends that would like to be a part of a Video Awareness Campaign for Adrenal Cortical Carcinoma. Send a two to five minute video of yourself holding a 14x22inch white poster board with the number of cases diagnosed per year with this type of cancer which is
1 in a million
Have yourself filmed holding
your sign in front of your chest while standing mostly still.
Film yourself in an area with activity
going on around you, in front of you or behind you or any combination of the
above, you are the director! You can be holding your baby,
having your family surrounding you, group hugs, receiving a kiss from your
honey or giving a kiss.
You can be standing in front of
your family as they are busy preparing dinner behind you or they can be busily
active around the dinner table behind you.
You can be stand in front of the
ocean as we see the waves rolling in, or standing on a busy street with passer
bys walking in front of or behind you, or on a busy street with cars
passing by behind you.
You are only limited by your imagination.
Film yourself however you feel the need to be expressed and we'll do the rest! Send your two to five minute video to
OverComeACC @ gmail.com
and we'll send you a set of OverComeACC note cards.