Welcome

OverComeACC.com

~Home Page~

~Adrenal Cortical Carcinoma affects one in a million people per year~

Currently there is no cure other than surgery

http://documents.cancer.org/acs/groups/cid/documents/webcontent/003081-pdf.pdf

You will find a lot of information here that I hope will help you, inspire you, comfort you and help to educate you, your family and friends as you begin to understand Adrenal Cancer and the dire challenges facing the Patients, Medical Profession and Cancer Research Scientists involved in ACC.

But ultimately, if you really want to make a difference

I can make it simple,

donate now!

See Donations page

Unfortunately, this is the 'only' way we are going to Cure Cancer!

We keep asking our government to cure cancer

without raising our taxes

that isn't going to happen.

Imagine.............

If 500 people visited this website

and each donated $100.00 to Adrenal Cancer Research

that would raise $50,000.00

which would pay for

One Full Time Researcher for one year at

The University of Michigan's Adrenal Cancer Program,

just to name one example!

Imagine if 1000 people donated $1000.00 each!

Would we be there yet?

Donations page

This is what is going to cure cancer!

The fact is that funding for research for ultra rare diseases comes most often from the patients themselves, their families and their friends and if they are very lucky, the communities themselves of those affected by the ultra rare diseases.

Stand up for them!

See Donations Page

What would you do?
~

Our Mission Statement
and ultimate goal:
To raise awareness of the Ultra Rare Cancer: Adrenal Cortical Carcinoma, considered an Orphan Disease and to promote funding for it's research.

Issues

Although Congress has substantially increased research funding for NIH

National Institute of Health

over the years,

funding for rare diseases has only increased slightly.

Rare Disease

defined

according to US

criteria:

as one that affects

fewer than

200,000 people.

As defined by the rare Disease Act of 2002

http://history.nih.gov/research/downloads/PL107-280.pdf

There are

more than

7,000
such

rare disorders.

~

These can also

be

known as

Orphan

Diseases.

An Orphan

Disease

can be defined as a

condition that

affects fewer

than

200,000 people

nationwide.

Some Orphan

Diseases have

patient

populations

of fewer than

one

thousand,

making them

Ultra Rare

Orphan Diseases

Collectively

they

affect

as many as 25

million

Americans

according to

the

NIH.

http://rarediseases.info.nih.gov/files/Rare_Diseases_FAQs.pdf
~

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1885144/
~

http://www.fda.gov/Drugs/ResourcesForYou/Consumers/ucm143563.htm

That makes

finding

treatments

for them a

serious

public health

concern.

There are over 200

different types of cancers.

Government

funding is

dedicated to the

10 to 20

most common cancers.

http://www.cancer.gov/cancertopics/factsheet/NCI/research-funding

Over two thirds

of all cancers are considered rare affecting fewer than 200,000 people per year in the U.S.

About half of those are considered ultra rare, affecting fewer than 40,000 people per year in the U.S.

The rarest of these are also

known as ultra-orphan diseases.

The term

ultra-orphan

disease

is

used to

designate

diseases

that affect only

small

numbers of

individuals,

so-called health

orphans.

Adrenal Cortical Carcinoma

is cancer of

the adrenal gland

and affects only about

one in a million

so as to be

termed an

Ultra Rare Cancer

Ultra-Orphan Disease

ACC

is just one of many

underfunded,

Ultra Rare Cancers

that could use

your help to

find a cure.

Be an Advocate for

Ultra Rare Cancer Research and Reform.

See our

Advocacy page

for information on "The Rare

Cancer Alert Act "

and ways you can

help.

Be the change you want to see in the world!

See our Donations page

Adrenal Cancer Research

University of Michigan's Dr. Gary Hammer

Adrenal Cancer Research

Adrenal Cancer Researches Impact

Adrenal Cancer Researches Genetics
~

Due to the rarity of Adrenal Cancer many doctors may not be as familiar or experienced with ACC and the unique requirements involved with treatment and surgery.

OverComeACC is an informational resource website designed to help you in your search to acquire knowledge and locate Doctors and Hospitals with Adrenal Cortical Cancer experience, as well as locate support groups for sharing of information that may be helpful to you in your search for treatment of this Ultra Rare Cancer:

Adrenal Cortical Carcinoma.

See our info page for more

Additionally, there is an ACC Community out there that has been traveling this road before you and accumulatively they have a wealth of knowledge to share and they do so willingly.

They can answer questions and share success stories as well as the hardships, enable-ling you to benefit from those that have come before you. We feel that we are all in this together and that makes this a much easier road to travel!

See our links page for support groups.

Meet a hero on our warriors page.

It is important that you have an experienced ACC expert on your team, thus it is imperative that you seek out Rare Cancer Specialists and hospitals experienced in this Ultra Rare Disease for both the experienced care that you will receive as well as the additional resources they will have available to you for you to know that you are not alone in this journey.

See our facilities page for recommendations.

ACC is an Ultra Rare Cancer that has us, the patients learning and acquiring knowledge right along with the Doctors. We are learning together and from one another,

thus fellow ACC Patients can

provide a newly diagnosed Adrenal Cortical Cancer patient with a wealth of knowledge and information to share to allow us all to become the very best

informed patient that we can be.

Be your own Best Advocate!

Knowledge is power!