OverComeACC.com


                                                 
                                                         
                                     ~Home Page~

~Adrenal Cortical Carcinoma affects one in a million people per year~

Currently there is no cure

You will find a lot of information here that I hope will help you,  inspire you, comfort you and help to educate you, your family and friends as you begin to understand Adrenal Cancer and the dire challenges facing the Patients, Medical Profession and Cancer Research Scientists involved in ACC and the desperate need for funding Adrenal Cancer Research. 

But ultimatelyif you really want to make a difference 

I can make it simple,

donate now!

See Donations page
 


Unfortunately, this is the 'only' way we are going to Cure Cancer!

We keep asking our government to cure cancer

without raising our taxes

that isn't going to happen.

Imagine.............

If 500 people visited this website

and each donated $100.00  to Adrenal Cancer Research

that would raise $50,000.00

which would pay for 

One Full Time Researcher for one year at

The University of Michigan's Adrenal Cancer Program,

   just to name one example!

Imagine if 1000 people donated $1000.00 each!

Would we be there yet?

"Invest in Research for Rare Cancer"





Donations page

This is what is going to cure cancer!

The fact is that funding for research for ultra rare diseases comes most often from the patients themselves, their families and their friends and if they are very lucky, the communities themselves of those affected by the ultra rare diseases. 

Stand up for them!
"Research Saves Lives!"

See Donations Page

What would you do?
~

Our Mission Statement
and ultimate goal:

To raise awareness of the Ultra Rare Cancer: Adrenal Cortical Carcinoma, considered an Orphan Disease and to promote funding for it's research.

 ~

Issues
Although Congress has substantially increased research funding for NIH 
National Institute of Health
over the years,
 funding for rare diseases has only increased slightly.
~
Rare Disease
defined 
according to US 
criteria:

as one that affects

 fewer than

There are 

more than

 7,000
 such 

rare disorders.
~

These can also

 be
known as

   Orphan    
               
Diseases.

~

An Orphan

 Disease

can be defined as a

 condition that

 affects fewer

 than

 200,000 people

 nationwide.
~

Some Orphan

 Diseases have

 patient

 populations

 of fewer than 

one

thousand, 

making them 

Ultra Rare

Orphan Diseases
~

Collectively

they

 affect 

as many as 25

 million
 
Americans

 according to
 
the

 NIH.

http://www.fda.gov/Drugs/ResourcesForYou/Consumers/ucm143563.htm
~

That makes

 finding 

treatments 

for them a
 
serious

public health

concern.
~
There are over 200 
different types of cancers.
~
Government

funding is
dedicated to the 
10 to 20 
most common cancers.
~
Over two thirds 
of all cancers are considered rare affecting fewer than 200,000 people per year in the U.S.
~
About half of those are considered ultra rare, affecting fewer than 40,000 people per year in the U.S.
~
The rarest of these are also 
known as  ultra-orphan diseases. 
~
The term

ultra-orphan 

disease 
is 

used to

designate 

diseases 

that affect only

 
small
 
numbers 
of

individuals,

so-called health

orphans.
~
Adrenal Cortical Carcinoma 
is cancer o
the adrenal gland 
and affects only about 
one in a million 
so as to be 
termed an 
Ultra Rare Cancer 
or
Ultra-Orphan Disease 
~
ACC 
is just one of many 
underfunded, 
Ultra Rare Cancers 
that could use 
your help  to 
find a cure. 
~
Be an Advocate for 
Ultra Rare Cancer Research and Reform.

See our 

Advocacy page 

for information on "The Rare

 Cancer Alert Act "

and ways you can

 help.

Be the change you want to see in the world!

See our Donations page

~

"Current Adrenal Cancer Research"

Adrenal Cancer~Endocrine Cancers


Due to the rarity of Adrenal Cancer many doctors may not be  familiar or experienced with ACC and the unique requirements involved with treatment and it's surgery. 

OverComeACC is an informational resource website designed to help you in your search to acquire   knowledge and locate Doctors and  Hospitals with Adrenal Cortical Cancer experience, as well as locate support groups for sharing of information that may be helpful to you in your search for treatment of this Ultra Rare Cancer:

Adrenal Cortical Carcinoma.

See our info page for more

Additionally, there is an ACC Community out there that has been traveling this road before you and accumulatively they have a wealth of knowledge to share and they do so willingly.

They can answer questions and share success stories as well as the hardships, enable-ling you to benefit from those that have come before you. We feel that we are all in this together and that makes this a much easier road to travel!


It is important that you have an experienced ACC expert on your team, thus it is imperative that you seek out Rare Cancer Specialists and hospitals experienced in this Ultra Rare Disease for both the experienced care that you will receive as well as the additional resources they will have available to you for you to know that you are not alone in this journey.

ACC is an Ultra Rare Cancer that has us, the patients learning and acquiring knowledge right along with  the Doctors. We are learning together and from one another, 
thus fellow ACC Patients can
 provide a newly diagnosed Adrenal Cortical Cancer patient with a wealth of knowledge and information to share to allow us all to become the very best
informed patient that we can be.
Be your own Best Advocate!
Knowledge is power!
~
~



~

ACC 

is just one of many underfunded

Ultra Rare Cancers 

that could use your help to 

find a cure. 

~
You will find websites here that

 will allow you to donate online

to help support 

Adrenal Cancer Research

thereby

helping to change the world 

and make a difference! 

See our Donations page

Together we can be the change we want to see in the world!

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Information Page

Facilities Page

Calendar and Events Page

Warriors Page

Media Page

Donations page

Bracelets and ACC Awareness Note card Page

Links Page

Advocacy page

Contact us @ OverComeACC @ gmail.com

~